Clothing

IMG_1471For as long as I can remember I have stolen my dad’s clothes. When I was little I wore his biggest and softest shirts as nightgowns. My favorites ended up being permanently mine that I would let him wear… maybe. We got into several joke arguments where I would complain that he was wearing my sweatshirt or my comfy shirt. I wore these clothes until they were so ripped and threadbare my mom had to point out I was verging on a massive wardrobe malfunction. My favorite was a very very very soft all cotton crimson tee-shirt from France that my aunt had given dad as a gift. I wore it for ten or more years before the holes were so gaping it was more scarf than shirt. I put the green Scotland shirt and the red viking shirt into a quilt so keep always, but France was too far gone.

Now I wear clothes he wore when he was sick. A pair of sweatpants and an oversized red fleece sweater. One of the most painful memories from his slow passing was sorting through his clothing with him in bed and trying to decided between my parents and myself what clothes should go where. I wanted him to keep his snow boots for the winter. I wanted him to keep his heavy coat for the first snow. I wanted material expectations that he was going to rally and make it to Christmas. Several times we were faced with harsh realities that he was not going to get better. A year later I still don’t believe that it is real a great deal of time. This was just some sick dream.

When I was tiny, toddler level, barely a memory, he would pick me up and zip me inside his jacket so he could carry me and I could be warm. Now I wear his sweaters and know this is the closest I get to hugging him again.

Let’s talk about Cancer

Cancer is a huge fucking problem. It affects so many people. The treatments are just as bad as the symptoms and the entire process is a trial of maybe this will kill the cancer before it kills you. Watching my father go through this was absolutely terrifying and scarring, but no one talks about trauma related to seeing your loved one in more pain than you thought possible. I had thought I had known fear before cancer. Both of my parents had serious chronic illnesses and I watched as they struggled, I tried to help, I tried to do what I could to make them feel better. They were both frequently hospitalized or needed to remain in bed for extended time. We never talked about how scary it was. Hovering at a parent’s bedside just wanting them to be healthy. Cancer took all of that fear and boosted it up to 1,000.

June or July in 2013 my dad started having weird symptoms. Full body itching, terrible itching that nothing helped and there was no rash or way to explain what felt like poison oak made babies with wool. He had trouble eating, his digestive system went completely out of whack. Doctors couldn’t figure it out. His primary care sent him to get specialist testing in San Francisco, four hours away from home. August 2013 my dad and mom left for what was supposed to be a day trip. It was a month before I saw my dad again. Three weeks before I saw my mom.

That’s cancer. Before you know and after you know. Everything changes while you try to make it look like nothing has changed. In the media it is always “battle with cancer” or “lost to cancer” “won against cancer”. It’s not a fucking sport. It feels like war, sure, but I resent the implication that its something as tangible as an army. Or scared off if you have enough will power. I hate how much it is used as the big plot twist in movies or casually mentioned everywhere. I don’t think it is fair to turn on the tv and be instantly reminded of the disease. Seeing what my parents went through as patient and primary care taker will haunt me for the rest of my life. We watched as my dad slowly slipped away. I was spared from a lot of it because I lived far away. My dad wanted me to keep chasing my dreams, he didn’t want me to be stuck. The last time we had a conversation he told me to keep going after my career, that the next time I saw him we could go get apple cider instead of going to radiation treatments. He always got better. No matter what life threw at him he always got better. Until he didn’t. I regret leaving him for those final two weeks. I was just too scared and wishing against all that he would get better.

Stage 4B Pancreatic Cancer. Death sentence. Five years or less, usually less. I was selfish enough to think that my dad would be the one to defy all odds and make it out. He hoped so too. In the same breath he would talk about how his doctor’s didn’t think it was looking good but he and my mom were going to grow old together. We were in denial. I’m still in denial.

 

Simply Woven

My father started making chainmail in earnest as a chemo hobby. In middle school, during my medieval history course, he had tried to teach me how to weave metal rings together into patterns and shapes. I was terrible at it. Years later he expanded what was already an admirable level of skill and created a business called

Simply Woven Rings  

Simply Woven Rings is a play on his initials SWR. Is it derivative and unoriginal to copy his business name to talk about missing him? Yes. Felt like it was ok though.

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What This Is

A year ago, I was terrified and lost, completely wrecked emotionally, angry at the universe for making terrible things happen to my family. Nothing has changed very much. I felt I couldn’t write about what was happening without making myself even worse, but after a year everything is just as difficult and confusing: so here it goes. This is going to be an honest account of my grief about my father’s passing and cancer, coupled with struggling to become a real growup without the man who was my guide.

 

struggle bussing through grief and travel

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